When “Mild Autism” Doesn’t Match Lived Reality

Autism Spectrum Disorder

Autism Spectrum Disorder

Perhaps I'm not “mildly autistic” or have “mild autism”. I think my level of autism is higher. I require more substantial support than what mild autism would need.

I wish I were at my mum's house right now to have a proper meal. My mum knows how to cook, but here in this house there isn't much to cook. I don't want to cook.

I told my parents I need a car. I feel dysphoric when I stay at an almost empty home all day.

Do you want to stay here all day, disconnected from the modern world you love?

Do you want to stay here all day, disconnected from the modern world you love?

There's no nearby shops, just forest and hills, and taking a walk to a shop with fewer items and returning home feels burdensome rather than enjoyable.

It's painful and exhausting to climb these hills. There are no cold bubble teas, Ai Cha drinks, KFC, laundry shops, cold tea and coffee, or my mum's cooked meat meals.

The only reason I stay here is because of electricity and my cats. The house isn't completed yet; the temporary door we use is just a curtain, and to leave this house, we place bricks on top of the bottom curtain.

GoToSocial.social Fediverse server

GoToSocial.social Fediverse server

Online, not everybody understands. I even got harassed by a person from the gotosocial.social Fediverse server because I was being honest and raw with my thoughts and my support needs.

Maybe that user is already working every day in an air-conditioned room, has various options to choose which meal to eat and hasn't eaten them until finished, hasn't drunk beverages to finish. Able to pay student loans every day. Who knows. My place is like an elites versus elites playground, I guess.

Google Gemini: “Getting harassed for being honest about your disability and living conditions is a form of ableism.”

I’m realising my autism may require more support than the “mild” label suggests. Living in isolation, without transport, food access, or comfort, drains me physically and mentally.

Online spaces don’t always understand this reality, and honesty about support needs can be met with judgment instead of care.


Kalvin Carefour Johnny